National Healthcare Quality and Disparities Report
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AHRQ Research Studies Date
Topics
- Adverse Drug Events (ADE) (1)
- Adverse Events (2)
- Ambulatory Care and Surgery (2)
- Behavioral Health (2)
- Cancer (2)
- Cancer: Prostate Cancer (1)
- Cardiovascular Conditions (1)
- Care Coordination (1)
- Caregiving (1)
- Care Management (1)
- Children/Adolescents (4)
- Chronic Conditions (4)
- Clinician-Patient Communication (14)
- Communication (6)
- Cultural Competence (1)
- Dementia (1)
- Depression (2)
- Diabetes (1)
- Diagnostic Safety and Quality (1)
- Disabilities (1)
- Education: Patient and Caregiver (5)
- Elderly (1)
- Electronic Health Records (EHRs) (7)
- Emergency Department (3)
- Evidence-Based Practice (5)
- Family Health and History (2)
- Guidelines (4)
- Health Information Technology (HIT) (8)
- Health Literacy (2)
- Hospital Discharge (1)
- Hospitalization (1)
- Hospitals (2)
- Implementation (1)
- Injuries and Wounds (1)
- Inpatient Care (3)
- Kidney Disease and Health (1)
- Learning Health Systems (1)
- Long-Term Care (1)
- Medical Errors (1)
- Medication (3)
- Medication: Safety (1)
- Neurological Disorders (1)
- Nursing Homes (2)
- Nutrition (1)
- Osteoporosis (1)
- Outcomes (1)
- Palliative Care (1)
- Patient-Centered Healthcare (9)
- Patient-Centered Outcomes Research (3)
- Patient Adherence/Compliance (1)
- (-) Patient and Family Engagement (40)
- Patient Experience (7)
- Patient Safety (3)
- Patient Self-Management (2)
- Pregnancy (1)
- Prevention (1)
- Primary Care (2)
- Provider: Clinician (1)
- Provider: Nurse (1)
- Provider: Physician (1)
- Quality Improvement (1)
- Quality of Care (2)
- Quality of Life (1)
- Racial and Ethnic Minorities (1)
- Registries (1)
- Rehabilitation (1)
- Research Methodologies (1)
- Shared Decision Making (11)
- Social Media (2)
- Web-Based (3)
- Women (1)
AHRQ Research Studies
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Research Studies is a compilation of published research articles funded by AHRQ or authored by AHRQ researchers.
Results
1 to 25 of 40 Research Studies DisplayedHaldar S, Mishra SR, Khelifi M
Exploring the design of an inpatient peer support tool: views of adult patients.
To better understand the opportunities for an inpatient peer support tool, the investigators surveyed 100 adult patients and caregivers, and conducted follow-up, semi-structured interviews with 15 adult patients. In this paper, the investigators describe five key peer support needs that their adult patient participants expressed: (1) adjusting to the hospital environment, (2) understanding and normalizing medical care, (3) communicating with providers, (4) reporting and preventing medical errors, and (5) empowering peers.
AHRQ-funded; HS022894.
Citation: Haldar S, Mishra SR, Khelifi M .
Exploring the design of an inpatient peer support tool: views of adult patients.
AMIA Annu Symp Proc 2018 Dec 5;2018:1282-91..
Keywords: Inpatient Care, Patient and Family Engagement
Khan A, Spector ND, Baird JD
Patient safety after implementation of a coproduced family centered communication programme: multicenter before and after intervention study.
The objective of this prospective, multicenter before and after intervention was to determine whether medical errors, family experience, and communication processes improved after implementation of the intervention to standardize the structure of healthcare provider-family communication on family centered rounds. The investigators concluded that although overall errors were unchanged, harmful medical errors decreased and family experience and communication processes improved.
AHRQ-funded; HS00063.
Citation: Khan A, Spector ND, Baird JD .
Patient safety after implementation of a coproduced family centered communication programme: multicenter before and after intervention study.
BMJ 2018 Dec 5;363:k4764. doi: 10.1136/bmj.k4764..
Keywords: Adverse Events, Clinician-Patient Communication, Communication, Medical Errors, Patient and Family Engagement, Patient Safety
Fisher KA, Tan ASL, Matlock DD
Keeping the patient in the center: common challenges in the practice of shared decision making.
This study examines the practice of shared-decision making (SDM) to achieve patient-centered decisions. It was determined that not all circumstances make it possible for that to happen and there have to be some basic elements present. Those elements include the patients’ health literacy, their emotional state, their relationship with the clinician and the nature of the decision.
AHRQ-funded; HS024596.
Citation: Fisher KA, Tan ASL, Matlock DD .
Keeping the patient in the center: common challenges in the practice of shared decision making.
Patient Educ Couns 2018 Dec;101(12):2195-201. doi: 10.1016/j.pec.2018.08.007..
Keywords: Clinician-Patient Communication, Shared Decision Making, Health Literacy, Patient-Centered Healthcare, Patient and Family Engagement
Moise N, Falzon L, Obi M
Interventions to increase depression treatment initiation in primary care patients: a systematic review.
Researchers investigated interventions for increasing depression treatment initiation in primary care settings. They found that collaborative/integrated care, preference treatment matching, and case management strategies had the best evidence for improving depression treatment initiation, but none of the strategies had high strength of evidence. While primary care settings can consider using some of these strategies when referring depressed patients to treatment, their review highlights the need for further rigorous research in this area.
AHRQ-funded; HS025198.
Citation: Moise N, Falzon L, Obi M .
Interventions to increase depression treatment initiation in primary care patients: a systematic review.
J Gen Intern Med 2018 Nov;33(11):1978-89. doi: 10.1007/s11606-018-4554-z..
Keywords: Patient-Centered Healthcare, Depression, Primary Care, Behavioral Health, Patient and Family Engagement
Prey JE, Polubriaginof F, Grossman LV
Engaging hospital patients in the medication reconciliation process using tablet computers.
Researchers conducted a pilot study to determine whether patients’ use of an electronic home medication review tool on a table computer could improve medication safety before or after hospitalization. Patients were randomized to the tool and out of 76 patients approached, 65 participated. About three-quarters (74%) made changes to their home medication list. Out of that total, 74% of the changes identified had a significant or greater potential severity, and 49% had a greater than 50-50 chance of harm. This medication reconciliation tool showed great potential to improve medication safety during and after hospitalization.
AHRQ-funded; HS021816.
Citation: Prey JE, Polubriaginof F, Grossman LV .
Engaging hospital patients in the medication reconciliation process using tablet computers.
J Am Med Inform Assoc 2018 Nov;25(11):1460-69. doi: 10.1093/jamia/ocy115..
Keywords: Adverse Drug Events (ADE), Adverse Events, Electronic Health Records (EHRs), Health Information Technology (HIT), Hospitalization, Hospitals, Medication, Medication: Safety, Patient and Family Engagement, Patient Safety, Prevention
Cornelius T, Moise N, Birk JL
The presence of companions during emergency department evaluation and its impact on perceptions of clinician-patient communication.
Investigators studies whether having a companion present during an emergency department visit improves clinician-patient communication. An observation cohort of patients with suspected acute coronary syndrome were recruited at an academic medical center from 2013-2016. There was no observational difference except when the patient had a high school education or less.
AHRQ-funded; HS025198.
Citation: Cornelius T, Moise N, Birk JL .
The presence of companions during emergency department evaluation and its impact on perceptions of clinician-patient communication.
Emerg Med J 2018 Nov;35(11):701-03. doi: 10.1136/emermed-2018-207735..
Keywords: Clinician-Patient Communication, Shared Decision Making, Emergency Department, Patient and Family Engagement
Guo M, Quensell M, Chang A
Understanding of key obstetric quality terminology by Asian and Pacific Islander subgroups: implications for patient engagement and health equity.
In this study, women in Oahu, Hawai'i with a recent delivery were interviewed about their understanding of ten common obstetric terms. Health literacy was assessed by the rapid estimate of adult literacy in medicine (REALM). Multivariable models predicted total terms comprehended by demographic factors. The investigators found that participants were unfamiliar with common obstetrics terminology. Comprehension struggles were more common among populations with maternal health disparities, including Asian and Pacific Islander subgroups, and those with low health literacy.
AHRQ-funded; HS021903.
Citation: Guo M, Quensell M, Chang A .
Understanding of key obstetric quality terminology by Asian and Pacific Islander subgroups: implications for patient engagement and health equity.
Matern Child Health J 2018 Nov;22(11):1543-49. doi: 10.1007/s10995-018-2597-8..
Keywords: Health Literacy, Patient and Family Engagement, Pregnancy, Women
Mishra MK, Saunders CH, Rodriguez HP
How do healthcare professionals working in accountable care organisations understand patient activation and engagement? Qualitative interviews across two time points.
In this article, the investigators assessed the use and understanding of patient engagement approaches among frontline clinicians and managers at accountable care organization-affiliated practices. The authors suggest that clinical teams in the ACO model would benefit from specificity defining key terms pertaining to the principles of patient activation and engagement.
AHRQ-funded; HS024075.
Citation: Mishra MK, Saunders CH, Rodriguez HP .
How do healthcare professionals working in accountable care organisations understand patient activation and engagement? Qualitative interviews across two time points.
BMJ Open 2018 Oct 31;8(10):e023068. doi: 10.1136/bmjopen-2018-023068..
Keywords: Patient and Family Engagement
Schoenfeld EM, Kanzaria HK, Quigley DD
Patient preferences regarding shared decision making in the emergency department: findings from a multisite survey.
In this study, the investigators sought to determine patients' desired level of involvement in medical decisions and their perceptions of potential barriers and facilitators to shared decision making in the emergency department (ED). They found that the majority of ED patients wanted to be involved in medical decisions, especially in the case of a "serious" medical problem, and felt that they had the ability to do so. Nevertheless, many patients were unlikely to actively seek involvement and defaulted to allowing the physician to make decisions during the ED visit.
AHRQ-funded; HS025701.
Citation: Schoenfeld EM, Kanzaria HK, Quigley DD .
Patient preferences regarding shared decision making in the emergency department: findings from a multisite survey.
Acad Emerg Med 2018 Oct;25(10):1118-28. doi: 10.1111/acem.13499..
Keywords: Clinician-Patient Communication, Shared Decision Making, Emergency Department, Patient and Family Engagement, Patient Experience
Sieck CJ, Walker DM, Hefner JL
Understanding secure messaging in the inpatient environment: a new avenue for communication and patient engagement.
Patient portals, and the secure messaging feature in particular, have been studied in the outpatient setting, but research in the inpatient setting is relatively less mature. In this study, the investigators analyzed and categorized messages sent within an inpatient portal to understand the topics discussed in secure messaging in the inpatient environment. They concluded that their analysis of secure message content suggested certain message types and topics such as Alerts/Requests and Questions about symptoms and treatment plans were particularly important to patients.
AHRQ-funded; HS024091; HS024349; HS024379.
Citation: Sieck CJ, Walker DM, Hefner JL .
Understanding secure messaging in the inpatient environment: a new avenue for communication and patient engagement.
Appl Clin Inform 2018 Oct;9(4):860-68. doi: 10.1055/s-0038-1675814..
Keywords: Clinician-Patient Communication, Communication, Electronic Health Records (EHRs), Health Information Technology (HIT), Inpatient Care, Patient and Family Engagement
Roydhouse JK, Gutman R, Keating NL
The association of proxy care engagement with proxy reports of patient experience and quality of life.
The purpose of this study was to assess the association of proxy-specific covariates with proxy-reported patient cancer care experience, quality rating, and quality of life. The investigators concluded that collecting data on proxy engagement in care is warranted if proxy responses are used.
AHRQ-funded; HS000011.
Citation: Roydhouse JK, Gutman R, Keating NL .
The association of proxy care engagement with proxy reports of patient experience and quality of life.
Health Serv Res 2018 Oct;53(5):3809-24. doi: 10.1111/1475-6773.12980..
Keywords: Cancer, Patient Experience, Patient and Family Engagement, Quality of Life
Hall SF, Wright NC, Wolinsky FD
The prevalence of overtreatment of osteoporosis: results from the PAADRN trial.
There is a robust body of literature addressing undertreatment in osteoporosis, but limited data addressing overtreatment. In this study, the investigators sought to understand overtreatment as this understanding is important to minimizing harm and decrease costs. The investigators found that in their sample of older adults, overuse of osteoporosis pharmacotherapy was only 8.1%. Nevertheless, they concluded, overtreatment exposed patients to possible risk with negligible chance of benefit and should be minimized.
AHRQ-funded; HS023009.
Citation: Hall SF, Wright NC, Wolinsky FD .
The prevalence of overtreatment of osteoporosis: results from the PAADRN trial.
Arch Osteoporos 2018 Sep 28;13(1):103. doi: 10.1007/s11657-018-0517-6..
Keywords: Osteoporosis, Shared Decision Making, Medication, Elderly, Patient-Centered Healthcare, Patient and Family Engagement, Care Management
Pandolfe F, Wright A, Slack WV
Rethinking the outpatient medication list: increasing patient activation and education while architecting for centralization and improved medication reconciliation.
The purpose of this study was to identify barriers impacting the time consuming and error fraught process of medication reconciliation and to design and implement an electronic medication management system where patient and trusted healthcare proxies can participate in establishing and maintaining an inclusive and up-to-date list of medications.
AHRQ-funded; HS021495.
Citation: Pandolfe F, Wright A, Slack WV .
Rethinking the outpatient medication list: increasing patient activation and education while architecting for centralization and improved medication reconciliation.
J Am Med Inform Assoc 2018 Aug;25(8):1047-53. doi: 10.1093/jamia/ocy047..
Keywords: Education: Patient and Caregiver, Health Information Technology (HIT), Medication, Ambulatory Care and Surgery, Patient and Family Engagement
Schoenfeld EM, Goff SL, Downs G
A qualitative analysis of patients' perceptions of shared decision making in the emergency department: "let me know i have a choice.".
In this study, the investigators sought to explore the use of shared decision making (SDM) from the perspectives of emergency department (ED) patients, focusing on what affects patients' desired level of involvement and what barriers and facilitators patients found most relevant to their experience. The investigators concluded that this exploration suggested that most patients wanted some degree of involvement in medical decision making but more proactive engagement of patients by clinicians was often needed.
AHRQ-funded; HS024311.
Citation: Schoenfeld EM, Goff SL, Downs G .
A qualitative analysis of patients' perceptions of shared decision making in the emergency department: "let me know i have a choice.".
Acad Emerg Med 2018 Jul;25(7):716-27. doi: 10.1111/acem.13416.
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Keywords: Clinician-Patient Communication, Shared Decision Making, Emergency Department, Patient and Family Engagement, Patient Experience
Ricciardi R, Shofer M
AHRQ Author: Ricciardi R, Shofer M.
Moving patient safety into ambulatory settings and beyond.
This paper discusses patient safety across various clinical settings, the importance of patient and family engagement, and innovations in patient safety such as the Patient Safety Learning Laboratories.
AHRQ-authored.
Citation: Ricciardi R, Shofer M .
Moving patient safety into ambulatory settings and beyond.
J Nurs Care Qual 2018 Jul/Sep;33(3):195-99. doi: 10.1097/ncq.0000000000000329.
Keywords: Ambulatory Care and Surgery, Patient and Family Engagement, Patient Safety
Ivey SL, Shortell SM, Rodriguez HP
Patient engagement in ACO practices and patient-reported outcomes among adults with co-occurring chronic disease and mental health conditions.
The purpose of this study was to assess the extent to which practices with patient-centered cultures, greater shared decision-making strategies, and better coordination among team members have better patient-reported outcomes for patients with diabetes and/or cardiovascular and comorbid mental health diagnoses. The study concluded that Accountable Care Organization patients with comorbid physical and mental health diagnoses report better physical functioning when practices have patient-centered cultures.
AHRQ-funded; HS024075.
Citation: Ivey SL, Shortell SM, Rodriguez HP .
Patient engagement in ACO practices and patient-reported outcomes among adults with co-occurring chronic disease and mental health conditions.
Med Care 2018 Jul;56(7):551-56. doi: 10.1097/mlr.0000000000000927..
Keywords: Chronic Conditions, Behavioral Health, Patient and Family Engagement, Patient-Centered Healthcare, Patient-Centered Outcomes Research
Bush RA, Richardson AC, Cardona-Grau D
Patient portal usage in pediatric urology: is it meaningful use for everyone?
This study examined pediatric urology patient portal enrollment and activation patterns at a tertiary pediatric hospital in Southern California by race/ethnicity, preferred language, gender, and residential region. The study concluded that primary language and socioeconomic factors may be significant barriers to portal adoption. Patient education to reduce these barriers may increase portal acceptance and increase meaningfulness to the portal for patients/parents and providers.
AHRQ-funded; HS022404.
Citation: Bush RA, Richardson AC, Cardona-Grau D .
Patient portal usage in pediatric urology: is it meaningful use for everyone?
Urol Pract 2018 Jul;5(4):279-85. doi: 10.1016/j.urpr.2017.05.002..
Keywords: Education: Patient and Caregiver, Electronic Health Records (EHRs), Health Information Technology (HIT), Patient and Family Engagement, Web-Based
Bardach NS, Burkhart Q, Richardson LP
Hospital-based quality measures for pediatric mental health care.
The objective of this study was to develop and test medical record-based measures used to assess quality of pediatric mental health care in the emergency department (ED) and inpatient settings. The investigators drafted an evidence-based set of pediatric mental health care quality measures for the ED and inpatient settings and used them to identify sex and race disparities and substantial hospital variation.
AHRQ-funded; HS020506.
Citation: Bardach NS, Burkhart Q, Richardson LP .
Hospital-based quality measures for pediatric mental health care.
Pediatrics 2018 Jun;141(6). doi: 10.1542/peds.2017-3554..
Keywords: Cancer, Caregiving, Children/Adolescents, Clinician-Patient Communication, Communication, Shared Decision Making, Diagnostic Safety and Quality, Patient Experience, Patient and Family Engagement
Churchill SS, Kieckhefer GM
One year follow-up of outcomes from the randomized clinical trial of the building on family strengths program.
This study tested the 12-month efficacy of an inclusive non-diagnosis-specific, parent education program with seven in-person sessions. The outcome measures were self-efficacy, parent and child shared management of chronic condition, coping skills, parental depressive symptoms and quality of life. All of the outcomes improved within the intervention group over 12 months.
AHRQ-funded; HS013384.
Citation: Churchill SS, Kieckhefer GM .
One year follow-up of outcomes from the randomized clinical trial of the building on family strengths program.
Matern Child Health J 2018 Jun;22(6):913-21. doi: 10.1007/s10995-018-2467-4.
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Keywords: Children/Adolescents, Chronic Conditions, Education: Patient and Caregiver, Family Health and History, Patient and Family Engagement
Radovic A, DeMand AL, Gmelin T
SOVA: design of a stakeholder informed social media website for depressed adolescents and their parents.
This paper describes iterative stakeholder interviews conducted with adolescents, young adults, parents, advocates, and clinicians and use of human computer interaction techniques to inform major design changes for two social media website for depressed adolescents and for parents.
AHRQ-funded; HS022989.
Citation: Radovic A, DeMand AL, Gmelin T .
SOVA: design of a stakeholder informed social media website for depressed adolescents and their parents.
J Technol Hum Serv 2018;35(3):169-82. doi: 10.1080/15228835.2017.1347552..
Keywords: Children/Adolescents, Depression, Patient and Family Engagement, Social Media
Rosas LG, Lv N, Lewis MA
A Latino patient-centered, evidence-based approach to diabetes prevention.
Cultural tailoring of evidence-based diabetes prevention program (DPP) interventions is needed to effectively address obesity and its related chronic diseases among Latinos in primary care. This article described the patient-centered process used to adapt the DPP and reported cultural adaptations. The investigators concluded that the 2-stage approach actively engaging patients, family members, providers, and health care system leaders reinforced the cultural congruence of the existing intervention while further strengthening it with adaptations promoting Latino family and community support.
AHRQ-funded; HS022702.
Citation: Rosas LG, Lv N, Lewis MA .
A Latino patient-centered, evidence-based approach to diabetes prevention.
J Am Board Fam Med 2018 May-Jun;31(3):364-74. doi: 10.3122/jabfm.2018.03.170280..
Keywords: Cultural Competence, Diabetes, Evidence-Based Practice, Patient and Family Engagement, Patient-Centered Healthcare, Racial and Ethnic Minorities
McCreedy E, Loomer L, Palmer JA
Representation in the care planning process for nursing home residents with dementia.
This study examined the participation of residents, family members, or representatives in nursing home (NH) long-term care planning for residents with cognitive impairment. A large for-profit NH system was used to recruit study participants. A sample of 18,552 long-stay NH residents in 2016 were surveyed. Of residents with no cognitive impairment, 8% had family or representative participation in care planning, compared with 26% of residents with severe impairments. Family participation was greater in NHs with more social workers.
AHRQ-funded; HS000011.
Citation: McCreedy E, Loomer L, Palmer JA .
Representation in the care planning process for nursing home residents with dementia.
J Am Med Dir Assoc 2018 May;19(5):415-21. doi: 10.1016/j.jamda.2018.01.004..
Keywords: Dementia, Nursing Homes, Long-Term Care, Patient and Family Engagement, Neurological Disorders
Hoffman AS, Sepucha KR, Abhyankar P
Explanation and elaboration of the Standards for UNiversal reporting of patient Decision Aid Evaluations (SUNDAE) guidelines: examples of reporting SUNDAE items from patient decision aid evaluation literature.
This Explanation and Elaboration article expands on the 26 items in the SUNDAE guidelines, providing a rationale for each item, and including examples for how each item has been reported in published papers evaluating patient decision aids. Authors and reviewers may wish to use it broadly to inform structuring of patient decision aid evaluation reports, or use it as a reference to obtain details about how to report individual checklist items.
AHRQ-funded; HS024250.
Citation: Hoffman AS, Sepucha KR, Abhyankar P .
Explanation and elaboration of the Standards for UNiversal reporting of patient Decision Aid Evaluations (SUNDAE) guidelines: examples of reporting SUNDAE items from patient decision aid evaluation literature.
BMJ Qual Saf 2018 May;27(5):389-412. doi: 10.1136/bmjqs-2017-006985..
Keywords: Shared Decision Making, Guidelines, Patient-Centered Healthcare, Patient and Family Engagement, Quality of Care
Hoffman AS, Sepucha KR, Abhyankar P
Explanation and elaboration of the Standards for UNiversal reporting of patient Decision Aid Evaluations (SUNDAE) guidelines: examples of reporting SUNDAE items from patient decision aid evaluation literature.
This Explanation and Elaboration article expands on the 26 items in the SUNDAE guidelines, providing a rationale for each item, and including examples for how each item has been reported in published papers evaluating patient decision aids. Authors and reviewers may wish to use it broadly to inform structuring of patient decision aid evaluation reports, or use it as a reference to obtain details about how to report individual checklist items.
AHRQ-funded; HS024250.
Citation: Hoffman AS, Sepucha KR, Abhyankar P .
Explanation and elaboration of the Standards for UNiversal reporting of patient Decision Aid Evaluations (SUNDAE) guidelines: examples of reporting SUNDAE items from patient decision aid evaluation literature.
BMJ Qual Saf 2018 May;27(5):389-412. doi: 10.1136/bmjqs-2017-006985..
Keywords: Shared Decision Making, Guidelines, Patient-Centered Healthcare, Patient and Family Engagement, Quality of Care
Mishra SR, Miller AD, Haldar S
Supporting collaborative health tracking in the hospital: patients' perspectives.
Through interviews and design probes, the authors of this study investigated hospitalized patients' health data tracking activity and analyzed their results using the stage-based personal informatics model. Their findings uncovered new directions for HCI research and highlighted ways to support patients in tracking their care and improving patient safety.
AHRQ-funded; HS022894.
Citation: Mishra SR, Miller AD, Haldar S .
Supporting collaborative health tracking in the hospital: patients' perspectives.
Proc SIGCHI Conf Hum Factor Comput Syst 2018;2018. doi: 10.1145/3173574.3174224..
Keywords: Health Information Technology (HIT), Hospitals, Health Information Technology (HIT), Patient Adherence/Compliance, Patient and Family Engagement